Aaron, Michele Dr. m.aaron@warwick.ac.uk

Dr Michele Aaron teaches and researches on Film at the University of Warwick, UK. She is author and editor of several books and has published widely on the cultural politics, and ethics, of representation and spectatorship. Her last two books focused on death and dying: the edited collection Envisaging Death: Dying and Visual Culture (Cambridge Scholars Press, 2013) and the award winning monograph, Death and the Moving Image: Ideology, Iconography and I (Edinburgh University Press, 2014). She is currently redirecting her fascination with difficult images into collaborative projects with community groups, charities and artists to explore further the potential for film to affect personal, social and political change.

Allen, Gemma gemma.allen@marystevenshospice.co.uk

Gemma Allen is the Diversity and Inclusion Lead at The Mary Stevens Hospice, Stourbridge, United
Gemma is an ambassador of hospice services, creating and supporting positive relationships and engagement with marginalised communities, ensuring palliative and end of life care is accessible for all.
Gemma is a part-time MSc Research student at Leeds Trinity University.

Anderson, Natalie na.anderson@auckland.ac.nz

Natalie Anderson is a registered nurse at Auckland Adult Emergency Department, and a Professional Teaching Fellow and PhD Candidate at the University of Auckland. She has twenty years’ acute care clinical experience in emergency, intensive care and prehospital settings. In addition to her nursing background, Natalie has a Masters degree in Health Psychology and is passionate about improving the preparation and support of health professionals. Natalie has published several studies investigating clinicians’ experiences with patient death, and her PhD research explores paramedics' decisions to start, continue or stop resuscitation efforts.

Aoun, Samar Prof. S.Aoun@latrobe.edu.au

Prof.Samar Aoun is Professor of Palliative Care, Palliative Care Unit, School of Psychology and Public Health, La Trobe University, Victoria and the Perron Institute for Neurological and Translational Science, Western Australia. She is a palliative care researcher with a public health approach and a focus on under-served population groups such as people with Motor Neurone Disease, Dementia, terminally ill people who live alone and family carers before and after bereavement. Samar advocates for a person-centred health and social care. Her research programs on supporting family caregivers at end of life and the public health approach to bereavement care have informed policy and practice at the national and international levels. Her recent work on social models in bereavement support has provided empirical evidence to strengthen the Compassionate Communities movement in bereavement support. She co-founded the South West Compassionate Communities Network in 2018.

Archer, Nikki nikki.archer@stgileshospice.com

Nikki Archer joined St Giles Hospice in 1998 as Bereavement Service Manager. In 2005 she became Clinical Support Service Manager and was appointed Director of Supportive Care in September 2015.
Nikki is responsible for the development and delivery of Supportive Care Services, including Therapy Services, Family Support and Bereavement and Community Engagement. she has a growing interest in the interface between service provision and community development approaches.
Nikki qualified as a nurse in 1991 and holds MSc and BSc (Hons) in Nursing and an Advanced Diploma in Counselling. She is currently studying for a professional doctorate at Keele University.
Nikki was a founder of the Association of Bereavement Service Coordinators (ABSCo), has been involved in the steering committee of the National Bereavement Alliance and is currently a member of the Bereavement Evaluation Forum. She has an interest in research and quality and has recently been involved in work to implement the Bereavement Care Standards.

Ardati, Mariam mariam@sakinafunerals.com.au

Mariam Ardati is a Funeral Director, Consultant and Educator based in Sydney. Following an information management pathway and many years working in health-related industries, Mariam developed an interest in the death-care sector. For the past 12 years, Mariam has dedicated her time as both a volunteer and care consultant for a number of funeral services, where she performs the funeral rites in accordance with Islamic tradition, provides spiritual and practical care to the grieving, and assists families through the coroner’s court and its processes. She is passionate about providing compassionate support for individuals and families who may be struggling with the loss of a loved one, particularly after a sudden or unexpected death.

Mariam holds workshops on death and dying from an Islamic perspective to health professionals in government and non-government organisations and community groups, in the hope that by having more diverse conversations about this often avoided topic, the more people will come to accept death to be a natural part in the cycle of life. If we can demystify the fear around death and dying, we can empower others to be comfortable talking about and preparing for one of life's most significant transitions.
Mariam also holds a Health Sciences degree (Health Information Management) from the University of Sydney, and is a Director and Consultant at Sakina Funerals.

Ayling, Terry terry.ayling@compassionategoldcoast.org.au

Terry Ayling is Facilitator of Compassionate Gold Coast and a Member of the Australian Compassion Council of the Global Charter for Compassion, with lead responsibility for the Compassionate Cities Initiative within the ACC Vision ‘Australia – A Continent for Compassion’. A spiritual-entrepreneur, Terry is also Founder and Creative Director of Spirited Communities p/l, a consultancy firm, working in the area of social enterprise and community creation and animation since 2002. For the last five (5) years Terry has served as the Spiritual Care Coordinator of both Gold Coast Health Spiritual Care Service and of Hopewell Hospice Services. After 25 years as a Uniting Church minister and chaplain in community, school, tourism, residential aged care, and hospital-hospice settings, Terry resigned so that he could work in the growing secular, multi-sectorial, 'spiritual not religious' context. He has been an active participant and proponent in the interfaith and progressive Christian movement. Terry serves on Gold Coast Health End of Life Committee and Queensland Health Care at the End of Life State Project Group and on Palliative Care Queensland Compassionate Communities Advisory Council.

Ball, Dianne

Barry, Vicki

Vicki Barry was appointed to PCWA’s business development portfolio in March 2016. She is an accomplished professional with extensive leadership and operational management experience across government, corporate, health and community sectors. She has held senior management roles at headspace Joondalup, UnitingCare West, City of Wanneroo and Diabetes WA.
Vicki has a Masters of Leadership and Management (Curtin University) and is a graduate of the Centre for Social Impact (University of Western Australia). She is keen to imbue social value and responsibility so that death and dying is everyone’s business. She is a champion of the development of Compassionate Communities in WA and is a proponent of advance care planning. In her effort to raise awareness and encourage people to talk about death and dying, she has hosted the Perth Death Café since 2014.

Beernaert, Kim kim.beernaert@ugent.be

Kim Beernaert (°1986) is a FWO post-doctoral fellow at Ghent University and chair of the “Palliative care for people with cancer” Research Programme at the End-of-Life Care Research Group of the Vrije Universiteit Brussel (VUB) & Ghent University. She has a master’s degree in experimental and theoretical psychology and a PhD degree in Social Health Sciences. Her PhD thesis has been awarded the Prijs Hoge Gezondheidsraad 2016 for best PhD thesis in “Science and Public Health”.Her main focus of interest is improving the palliative care and end of life care for people with cancer. She is also responsible for research about improving the palliative care for babies and children with life-threatening conditions.

Bernheim, Jan jan.bernheim@vub.be

Jan L. Bernheim is married to Clara Castelyns, an art historian, with whom he educated five children. He is a physician (University of Gent 1966), a medical oncologist, PhD in medical sciences (PhD work on cell death, University of California San Diego and Vrije Universiteit Brussel (VUB) 1978), Master in Public Management (Université Libre de Bruxelles 1990). His successive appointments were at the universities of Gent, Amsterdam, Brussels, Butare (Rwanda), UC San Diego and Brussels again. His publications include over 150 international peer-reviewed articles. They range from studies of cell death and hormonal carcinogenesis to quality of life and end-of-life issues.
His current research areas include Anamnestic Comparative Self Assessment (ACSA), an original cross-culturally applicable method to measure subjective quality of life and the Patient-Physician Information and Communication Covenant (ICC), a procedural ethics method to help resolve conflicts between patient autonomy and physician beneficence. The ICC aims to maximize patient autonomy according to patient preferences, independently from the cultural and sub-cultural context.
He co-founded the first Palliative Care organisation in continental Europe in 1979 and the European Study Group for Quality of Life of the European Organisation for Research on the Treatment of Cancer (EORTC) (1979), of which he was the first chairperson.
His third world activities included teaching, the promotion of family planning and social development projects in Rwanda before the (predicted) 1994 genocide.
Recently retired, he is an emeritus professor and researcher in medical ethics, end-of-life issues and quality of life in the End-of-Life Care Research Group of the VUB and Ghent University, the Study Group Evolution, Cognition and Complexity (ECCO) and the Centrum Leo Apostel for interdisciplinary research of the VUB and the Coma Science Research Group of the University of Liège.

Bevan, Alan

Alan Bevan is a community representative with the SA Health & Medical Research Institute and the Health Translation SA Board Research Advisory Working Group. In 2019 he was appointed to the NHMRC Community Observer Working Committee. Previously he was a Director on the boards of National Dementia Research Foundation and Alzheimer’s Australia SA. He cared for his partner until her death, aged 54, from Alzheimer’s Disease. In so doing, he formed strong views about the importance of palliative care services. Prior to retirement, Alan worked in Ministerially owned companies as General Manager and Project Director leading national education projects.

Bidmade, Dierdre

Deidre’s passion to improve end of life care in the Warrnambool community led to the development of the Hospice in the Home program. Thanks to her unwavering commitment, families caring for a dying relative at home can now be helped in this difficult time by volunteers trained through the program. Deidre’s devotion to helping families manage such difficult experiences is an inspiration to all who meet her. Deidre worked as a Palliative Care Nurse and is presently employed as an Aged Care Coordinator for the RSL. She remains on the Committee of Management for the Hospice.

Bindley, Kristin kristin.bindley@health.nsw.gov.au

Kristin is the Bereavement Counsellor for Supportive and Palliative Care in Western Sydney Local Health District, with over ten years experience providing bereavement counselling and support. Prior to this, she worked a social worker in chronic and complex illness, and coordinated a project funded by the Commonwealth Local Palliative Care Grants Program in 2007-08. Kristin has pursued her interest in research within and alongside her current role. Recently, she worked as a research officer for the University of Notre Dame in 2016-17 on a study involving palliative care and coronially bereaved family members. Kristin is currently a PhD candidate in the Faculty of Health at the University of Technology Sydney. Focussed on Western Sydney, her PhD study will explore experiences of social welfare policy in bereavement, following informal end-of-life care provision.

Binns, Barbara

Barbara Binns has for three years focused her work with The Australian Centre for Social Innovation on the design, testing and development of the Weavers peer to peer model of support for carers. She brings a combined background in education and community programmes where her commitment has been in supporting individuals to take the lead in their own lives.
She has applied this background and passion to her work with families and carers and has been at the centre of demonstrating and now scaling the Weavers program both interstate and overseas.
Her work prior to TACSI has included engaging primary children in creative ways of learning to advocating for Aboriginal people in gaining sustainable employment.
Barbara holds an absolute belief and passion for people of all ages to have the opportunity to realise dreams and unique potential whatever that means to them.

Bishop, Michael Michael.Bishop@chhealth.com.au

Michael Bishop has worked as an Occupational therapist in a wide variety of clinical settings including Palliative Care. He was a founding member of the Australian National Art Therapy Association, Services for Australian Rurl and Remote Allied Health and has received High Commendation from the Australian Human Rights Commission for his work in destigmatising mental illness. He has established and run a community palliative care program (including inpatient care) at the Lady Bjelke-Petersen Community Hospital in Kingaroy.

Blishen, Mo Mo.Blishen@ccdhb.org.nz

Mo Blishen is an RN with 19 years experience. She is a district nurse who has a passion for palliative care. She is also one of 4 nurses who works for DEBRA NZ working with people who have Epidermolysis Bullosa.

Boe, Mary Ann maryann@devanation.com

Mary Ann Boe is a Community Weaver. Her need and love for community began after the death her son in 1986. When he died, after living 12 years past his "two weeks to live" diagnosis, she decided to ‘dance’ in the face of suffering and created the Cedar Cultural Center. Thirty years later it remains the premier center for global music and dance in the Midwest United States. The Cedar taught Mary Ann the power of the arts as a gateway for compassionate and healing. Mary Ann’s son, Déva, gifted her with a life’s mission to create space where communities can gather to share their stories of loss, tap into the wisdom therein, and create best practices and support for a more peaceful dying process. Her journey of building community around loss includes: Deva House, a residential hospice for children; The Conscious Dying Institute, Restoring Death to Its Sacred Place in the Beauty, Mystery and Celebration of Life - serving as executive director; and in 2017, embarking on the creation of Deva Nation, building the first Compassionate Community in America, under the close and generous mentorship of Dr. Allan Kellehear.

Boyd, Michal michal.boyd@auckland.ac.nz

Dr Michal Boyd is a Gerontology Nurse Practitioner and Associate Professor with the School of Nursing and the Freemasons’ Department of Geriatric Medicine at the University of Auckland. She also practices clinically in a residential aged care. She has been a provider, leader and researcher of healthcare innovations for older people since the early 1990s. Dr Boyd is currently clinical lead for the Health Quality and Safety Commission Aged Residential Care workstream and involved in researching new models of primary healthcare for older people and end of life care in residential aged care facilities.

Brennan, Frank

Dr Frank Brennan is a Palliative Care Physician based in Sydney, Australia. He has major clinical interests in the care of patients with End Stage Kidney Disease and Motor Neurone Disease. He is past President of the Australian and New Zealand Society of Palliative Medicine (ANZSPM). He is a Senior Lecturer in the Faculty of Medicine, University of New South Wales. Frank is a lawyer and has published extensively on the human rights dimensions of pain management and palliative care. He has published narratives drawn from his work that have been broadcast on Australian national radio.

Bruce, Jan jbruce@mav.asn.au

Jan is the Positive Ageing Adviser at the Municipal Association of Victoria (MAV) and within that role is managing the Victorian Councils: Supporting Communities Around End of Life Project. Jan has worked with the MAV for over 10 years where she has provided leadership and strategic advice to councils as they work to create communities that are good places to age in. The End of Life project has introduced a new direction for local government in their work with older people and communities.

Butler, Helen h.butler@auckland.ac.nz

My name is Helen Butler and I am a Professional Teaching Fellow at the University of Auckland. I have worked as an RN for over 25 years and mostly specialised within mental health and palliative care. I am committed to the provision of effective equitable evidence based palliative care to people and their families/whanau particularly to those who are considered vulnerable.
I completed my Master of Nursing in 2017 looking at access to specialist palliative care for people diagnosed with MI. I am even more passionate about the issues of equitable access to palliative care for those who are considered vulnerable now compared to when I started my post-graduate journey. I am currently undertaking further study (PhD) to explore the issues around palliative care for people diagnosed with MI. The title of the Conference is closely aligned with my passion to promote timely, appropriate and equitable care for people diagnosed with MI who are dying.
Masters research completed 2017
Portfolio title ‘End of Life Care Issues for People Diagnosed with Serious and Persistent Mental Illness (SPMI)’.
Butler, H., & O'Brien, A. J. (2017). Access to specialist palliative care services by people with severe and persistent mental illness: A retrospective cohort study. International Journal of Mental Health Nursing. doi:10.1111/inm.12360

Callanan, Helen helen@preparingtheway.com.au

Helen Callanan (B. Ac, Cert IV TAE, Reiki Master, NDAN Committee Member) is a practicing End of Life Doula and founder/educator of Preparing the Way which presents 4 Day End of Life Doula Training in collaboration with the Australian Doula College and Natural Grace Holistic Funeral Directors. Helen is a sought after expert in the area of EOL Doula practices and death literacy, and her views has been sought on programs such as The Project, ABC radio, SBS, Sunday Telegraph and industry panel discussions. Helen’s depth of knowledge include training in Chinese Medicine, Reiki, Grief Counselling and Death Midwifery with 30 years experience in palliative/hospice situations.

Chambaere, Kenneth kenneth.chambaere@Ugent.be

Prof. Kenneth Chambaere is Assistant Professor at the End-of-Life Care Research Group of the Vrije Universiteit Brussel (VUB) and Ghent University in Belgium. He obtained an MSc in Sociology in 2004 and a Postgraduate in Logic, History and Philosophy of Science in 2005, before obtaining a PhD in Medical-Social Sciences in 2010. From 2010 to 2016 he was a Postdoctoral Fellow of the Research Foundation Flanders (FWO). Prof. Chambaere is involved in various research concerning palliative and end-of-life care, including a study aimed at integrating palliative home care in patients with severe COPD, a study of volunteer involvement and roles in palliative care provision, a study to improve physician-patient communication in advanced cancer, and research into medical end-of-life decision making. He has published more than 50 international peer-reviewed papers to date.

Chen, Ming-Chen mingchenchendr@gmail.com

I am a Consultant in Department of family medicine at Taipei City Hospital, Yangming branch. I am a full-time clinician, holding responsibility for an integrated geriatric clinic, consultant of a sub-acute rehabilitation ward within the Taipei City Hospital, Yangming branch. I have regular palliative home visit with team members weekly and in charge of a compassionate community in Shilin, Taipei. I have special interests in community geriatrics, home care medicine and rehabilitation.

Chen, Ya-Fang

Chen, Tzu-Hui A4594@tpech.gov.tw

Ms. Tzu -Hui Chen has been serving in the Taipei City Hospital for 20 years and has been devoting herself in the compassionate community service in recent years. This could improve the people and the community to understand more about the compassionate community, enhancing mutual support in the neighborhoods. It is hoped that the spirit of the affectionate community, through the share and inheritance, could be spread to the whole Taipei City.

Collier, Aileen

Aileen Collier is Senior Lecturer, Te Ārai Palliative Care and End of Life Research Group, School of Nursing, University of Auckland. Her research is focused on patient safety and quality of palliative care. Aileen's research interests and teaching philosophy undergirds a commitment to her practical work, with moral and pragmatic questions always being anchored to clinical 'realities'. She is an advocate of service user leadership in palliative care service delivery, education and research.

Cooper, Merran merran@touchstonelifecare.com

Dr Merran Cooper has a mission:
1. To prevent bad deaths with the use of technology
2. To promote healthy living and dying for all people.
She is a
• Global advocate for efficient & equitable healthcare, including palliative care
• An author, playwright, slam poet and now producer of a documentary series telling stories of death and dying from all around the world.
• Widow , mother and stepmother. She cared over 20 years for her best friend who died, and for a partner with a mental illness.
• She had 6 HSCs in her home in 7 years and started studying medicine at the age of 50 with the aim of working in palliative care because anything had to be easier than being at home with 6 kids .
But when finally a doctor she saw too many bad lonely panicked deaths. And too few good ones. She saw fear causing overmedicalisation of death with its accompanying torturous prolonging of life.
Fear of litigation in her colleagues , fear of sounding callous by families.
She realised how few people have Advance Care Plans, that if they exist they are usually illegible, torn or lost and that what is needed is a full system of digital advance care plans, integrated with eMR and health care software. S
So she created a system of digital Advance Care Directives and called it Touchstone Life Care TLC for short
That’s the preventing bad deaths part.
The promoting good deaths involves education, speaking gigs, and a 4 part film series to be completed in late 2018.
Merran believes at its worst- death can be soul destroying.
At its best death can be a healing and transformational time for generations of people.

Day, Elham Elham.Day@hummingbirdhouse.wmq.org.au

Elham Day is a death care worker, counsellor and grief advocate. He manages the family support program at Hummingbird House Children’s Hospice in Brisbane, Queensland. With years of diverse experience working alongside families and communities - Elham is particularly interested in how soulful and participatory approaches to death and dying can animate individual and collective experiences of grief, and life in the wake of loss.

De Vleminck, Aline adevlemi@vub.be

Aline De Vleminck (born 1986) is a post-doctoral researcher working at the End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University. She obtained a Master’s degree in Sociology at the Vrije Universiteit Brussel (VUB). Aline did her PhD research on advance care planning (ACP) in general practice (2011-2015). In 2015, she was selected for a Fulbright Scholarship Award to conduct research on hospice care for dementia patients and a study on ACP in patients with young-onset dementia (Mount Sinai, New York). She currently works on a follow-up project of her PhD dissertation regarding ACP in general practice. In 2017, she obtained her postdoctoral fellowship from FWO, Flanders in Belgium.

de Voogd, Xanthe x.devoogd@amc.uva.nl

Delaney, Angela angela.delaney@health.qld.gov.au

Angela is a neurologic music therapist working within medical & community settings. She has almost 20 years of experience working alongside children and adults a variety of settings. Angela is recognised as a pioneer in Queensland Palliative Care & Community Music Therapy. Her clinical work and research are guided by principles of the neuroscience paradigm where music engages the brain and behavior functions. She has a reputation to engage through her application of innovative programs, using music to effect change, experience compassion and growth.

Denham, Skie Skie@lifetimefunerals.com.au

Skie Denham is the managing director of Lifetime Funerals, a unique and tailored funeral service, supporting families from Wollongong to the Blue Mountains.
Skie is a proud Wirajuri and Jaru descendant, her funeral company specialises in aboriginal funerals, "Sorry Business".
She has a vast background and experience in the community service sector, running and managing local not for profit community centres across Melbourne, Darwin, and Sydney.
Skie entered the Funeral Industry in 2014 with an open mind and compassion, she soon realised that the industry was a money-making enterprise, often taking advantage of the vulnerable and grieving. She developed a business model which was founded on family-focused care and became the managing director of Lifetime Funerals 2018. The concept behind Lifetime Funerals is " Honouring The Memory", matching each farewell with the same unique qualities that the person had whilst they where alive.
Skie is also an End-Of-Life-Doula, which is essentially an advocate for a palliative care patient, allowing a person to pass in their own way, on their own terms. She successfully combines the two skills sets to provide transparency and compassion around all things death and dying related.

Desh, Preeya pd2577@cumc.columbia.edu

I am a pediatric hematologists/oncologist from West Palm Beach, Florida with training from Brown University. Currently, I am finishing up additional training in Palliative Care at Columbia University.
I am the founder of Wabi Sabi Health Foundation, a nonprofit that uses expressive arts to train clinicians in palliative care in India.
I was a finalist last year at Yale’s Unite for Sight Global Health and Innovation Conference for this concept of using music and art in palliative care in India.
I am working with Dr. Rajgopal from Pallium India to develop a curriculum for psychosocial workers that is culturally relevant.

Dhavernas, Catherine c.dhavernas@griffith.edu.au

Catherine Dhavernas is Associate Professor in the School of Humanities, Languages and Social Science at Griffith University. Initially a specialist in contemporary French literature and theory, Dhavernas’ background in literary studies, her research on the limits of representation in relation to trauma, illness and death, and her volunteer work in the area of palliative care (in Canada and Australia), led her to undertake collaborations with medical practitioners and to develop interdisciplinary research projects in the area of the Medical Humanities in partnership with healthcare organizations. Her current research and teaching both focus on Narrative Medicine, Biography, Aging and End of Life Care. She is involved in a number of research projects whose primary motivation and objective is to facilitate and promote better care for the elderly and dying through interdisciplinary collaborations between medicine and the humanities.

DiGiacomo, Michelle michelle.digiacomo@uts.edu.au

Dmytrenko, Kerry kerry.d@achg.org.au

Kerry Dmytrenko - Kerry is a Registered Nurse who has extensive experience in the Oncology/Haematology/Palliative Care fields and has worked in both public and private healthcare facilities in management, education and clinical roles.
Kerry’s current role is General Manager and she is also an endorsed Nurse Practitioner.
Kerry holds Masters Degrees in both Health Management and Nursing – Palliative Care; as well as a number of other post graduate qualifications in nursing.

Dobata, Tomoyuki tdobata@hotmail.com

2003-2012 Department of Pediatrics, Teine Keijinkai Hospital
2013- Chairperson, Toseikai Healthcare Corporation

Donovan, Jenny jenny@inclusivedesign.net.au

Jenny is the principal of Melbourne based urban design practice Inclusive Design. Her work spans the public, private and community sectors and focuses on designing places that create the optimal chances for people to thrive and fulfil their potential. She has a particular interest in the interaction between the design of the built environment and social outcomes in remote locations. She is the author of "Designing to heal: planning and urban design responses to disaster and conflict" published by the CSIRO "Designing the compassionate city" published by Routledge and the forthcoming "Recipes for urban happiness' also to be published by Routledge.

Donovan, Leigh leigh.donovan@health.qld.gov.au

Leigh graduated with a degree in Social Work in 2001 and has since become highly regarded in Australia for her contribution to the field of bereavement in the context of paediatric oncology and paediatric palliative care. Leigh held the inaugural position of Bereavement Coordinator, Paediatric Palliative Care Service, at the Lady Cilento Children’s Hospital, Brisbane between 2010 and 2018. In 2016 Leigh completed her PhD through the University of New South Wales (UNSW) and the Kids Cancer Centre, Sydney Children’s Hospital, exploring the experience and needs of parents whose child has died from cancer. In 2017 Leigh was appointed Conjoint Lecturer through UNSW, where she continues to pursue her research interests in paediatric palliative care, end of life and bereavement care. Since completion of her thesis, in collaboration with the children’s cancer charity Redkite, Leigh has published By My Side, a collection of parent narratives which aims to shine a light on what it means to be a bereaved parent. Leigh has been a long-term advocate for a hospital wide response for bereavement care for families following the death of a child, and in 2017 was awarded a Churchill Fellowship to visit hospital, hospice and community-based bereavement programs in the USA, Canada, UK, Ireland and South Africa. The aim of the fellowship was to inform guidelines for bereavement care in tertiary children’s hospitals in Australia. In March 2019 Leigh realised her long-term vision by being offered the position of Bereavement Coordinator, Children’s Health Queensland. This strategic role will see the development of a world class response to the care of bereaved families in the tertiary children’s health setting.

Durbin, Katie katiedurbin1970@gmail.com

I am a Clinical Nurse Specialist at Cranford Hospice, Hastings, New Zealand. I have been in this role for four years and worked within palliative care for 12 years. I have recently completed my master’s in health science at the University of Canterbury. My research thesis explored the use of structured health diaries in palliative care and if it improved symptom insight leading to improved symptom management and better communication between patients and health professionals.
During these 12 years I have worked within the Hospice’s inpatient unit and with community patients within their own homes. I have jointly designed and established a rural areas palliative care initiative and established and maintained a working relationship with our local prison service. I have been a joint regional research collaborator for a research study conducted by the University of Auckland examining the cultural rituals and customs of end of life care for Māori patients.
At present I am implementing the use of structured diaries for palliative care patients registered with Cranford Hospice after the positive findings from my research thesis.

Edmonds, Samantha samantha.edmonds@lgbtihealth.org.au

Samantha Edmonds is the Silver Rainbow, National Project Manager at the National LGBTI Health Alliance. Silver Rainbow is all about understanding and celebrating the diversity of genders, bodies, sexualities, and relationships of older Australians.
Sam is a member of a number of national advisory groups in Ageing and Aged Care both Government and Non-government and was appointed to the Aged Care Sector Committee (ACSC), which provides advice to the Government on aged care policy development and implementation. She is also Chair of the ACSC Diversity Sub Group.
Samantha holds Masters Degrees in Social Policy, Politics and International Relations. She has completed the Macquarie University Global Leadership Program. Prior to her current role Sam has worked in diverse fields including health policy and human rights. She was part of a small team with the Australian Human Rights Commission working on the Same-Sex: Same Entitlements Inquiry.
Sam is a palliative care volunteer, has trained as a death doula and has recently started as a palliative care biography writer. She also volunteers as a consumer advocate with Dementia Australia.

Eldridge, Vanessa vanessa.eldridge@marypotter.org.nz

Vanessa is a Director of Four Tides Indigenous Healing - a company that believes Māori healing should be a part of every health service. She is a Contemporary Rongoā Māori Practitioner, has worked with groups internationally and has been invited to speak on an indigenous panel around Cancer and Palliative Care in Canada. She is a Kaitiaki (Bi cultural Supervisor) and has a background in Nursing. Four Tides supports the growth and practice of other Māori healers through training and reflection. Vanessa and her colleagues are driven by equity, social justice and the decolonisation of the indigenous mind. She is Wellington born and of Rongomaiwahine and Ngāti Kahungunu tribal descent.

English, Wendy wendy@brightearth.co.nz

Wendy English is a nurse who feels that curiosity is a wonderful asset for nurses to have. Curiosity in Wendy’s case has led her to answering some of her clinical questions with research. Her interest in nursing linguistics is a driver to discover more about what happens between nurses, patients and families as they communicate in end of life care settings. In particular how rapport is created or not created and the effect this has on patient care.
Wendy regards herself as really fortunate to work in the phoenix-like city of Christchurch at Nurse Maude hospice. She has just completed a Master in Health Science degree and is embarking on a PhD under the umbrella of the Te Ārai palliative care and end of life research group.

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