Fisher, Helen firstname.lastname@example.org
Fon, Vivian email@example.com
Viviana Fon works as a counsellor with the North Wellington/Porirua community team of Mary Potter Hospice providing counselling to people living with a life limiting illness and their families. In her role, Viviana is also involved in bereavement support, including facilitating grief groups and community education around loss and grief. Viviana enjoys building strong partnerships with key stakeholders and working on collaborative projects. Viviana seeks to remain intentional in growing compassion for self and others and keeping compassion at the heart of healthcare practice. She is committed to justice and peace issues within her local community, including work around poverty, the living wage and housing equity.
Fu, Tsai-Ping A4594@tpech.gov.tw
Ms. Tsai-Ping Fu, previously a medical laboratory scientist, has served in Developing and Planning Center, Taipei City Hospital for 2 years. Ms. Tsai-Ping Fu works as a translator in the promotion of Compassionate Community to introduce the localized Compassionate Community in Taiwan to the world. Besides, Ms. Tsai-Ping Fu also took part in some events held in the community and enjoys participating in people’s daily life.
Funk, Amy firstname.lastname@example.org
Dr. Amy M. Funk earned undergraduate degrees in Psychology and Nursing and a Master’s degree in Gerontology. Dr. Funk earned her Ph.D. from Illinois State University. Dr. Funk achieved board certification in Gerontological Nursing in 2014. Dr. Funk served as the Advance Care Planning Coordinator for Supportive Care with OSF Health Systems in Peoria, IL. Dr. Funk received the Dr. Jean Aldag Award for Outstanding Commitment to Education, Research, Health and Social Services as well as Saint Francis Medical Center College of Nursing “Excellence in Nursing” Award. Dr. Funk is a member of Sigma Theta Tau International Honor Society of Nursing and Phi Kappa Phi Honor Society.
She currently teaches nursing at Illinois Wesleyan University. She teaches lecture and clinical for mental health nursing and public health nursing. She recently developed curriculum for an interdisciplinary palliative course. She sits on the policy committee for the National Health Care for the Homeless Committee.
Her dissertation work involved interviewing individuals who had lost a sibling. The loss of her two brothers began a lifelong interest in the impact of grief and loss on the individual and family. One of her primary research interests is sibling grief. She also focuses on older adult care and end-of-life issues. Throughout her life, a common focus has been on empowering others to overcome personal obstacles. She has worked with a variety of marginalized populations in developing personal potential. Her passion for vulnerable populations has given her the opportunity to develop self-esteem programs for at-risk youth in migrant communities, housing developments and on a Native American reservation. She has worked with older adults, individuals experiencing mental illness and homelessness. She tutored nursing students who have English as a second language.
Gain, Wendy email@example.com
Wendy Gain is a former palliative care nurse who is an Independent Consultant, Partnership Broker and Appreciative Inquiry facilitator. John Rosenberg is a Registered Nurse with a clinical background in community palliative care, who is a Research Fellow in the Centre of Research Excellence in End of Life Care at Queensland University of Technology.
Ginsborg, Stephen firstname.lastname@example.org
Dr Stephen Ginsborg is a General Practitioner on the Northern Beaches dedicated to providing compassionate care. His work includes Mental Health, Family Medicine, Elder and Palliative Care. Stephen is active on many Boards including CCNB Ltd. CCNB is building community, has embraced the Compassionate Communities model and is supporting others to do the same. For many years Stephen has been working with Groundswell to bring the Compassionate Communities model to Australia.
Goodrich, Simon email@example.com
Gott, Merryn firstname.lastname@example.org
Merryn is Director of Te Arai Palliative Care and End of Life Research Group, based at the University of Auckland in Aotearoa, New Zealand. Te Arai undertake a programme of research exploring aspects of ageing, dying and grieving within a bicultural framework and from a social justice perspective.
Gourlay, Kelly Kelly@palliativecare.org.au
Kelly Gourlay has been the National Policy Advisor at Palliative Care Australia since May 2017. Prior to this she has held senior policy roles at the Australian Government Department of Health and The Pharmacy Guild of Australia, and was the Deputy CEO of the ACT Division of General Practice and State Based Organisation. Kelly has a Bachelor of Medical & Biotechnology and a Master of Public Health.
Grassau, Pamela email@example.com
Pam Grassau, an Assistant Professor in the School of Social Work at Carleton University, a Lecturer in the Division of Palliative Care at University of Ottawa, and an Affiliated Investigator with the Bruyere Research Institute, Pam has been working in palliative care education and research for over 10 years. Building on over 6 years working in community-based research in communities who are often marginalized in mainstream breast cancer research, Pam made the decision to shift her focus into hospice, palliative care. Focusing on patient and family member experiences of advanced illness, end of life and bereavement, Pam’s doctoral work focused specifically on mothers living with advanced illness and their adult daughters, with a specific focus on care giving/receiving, life review, legacy and loss. Working in collaboration with regional health programs, and health care teams delivering hospice, palliative care, Pam has had an opportunity to build research projects and programs which further our understanding of the needs, experiences and supports that clinical care providers need in attending, strengthening and enhancing resilience at individual, relational and organizational levels. Drawing on innovative public health approaches to palliative care, Pam has had an opportunity to facilitate Death Café’s, Die-alogues, and several conversation/discussion series to think compassionately and critically about living, dying, and living while dying. Strongly weaving all these collective interests together, Pam is thrilled to have an opportunity to work with Compassionate Ottawa, a volunteer, community-led initiative, on a 3-year community-based participatory action research project, entitled Healthy End of Life Project (HELP) Ottawa. Building on the ground-breaking work of HELP developed at La Trobe University, HELP Ottawa is focused on developing a Canadian-focused HELP framework with a focus on creating a collaborative, community culture for end of life.
Grindrod, Andrea firstname.lastname@example.org
Andrea Grindrod is Projects Manager of the Palliative Care Unit at La Trobe University, Melbourne. Andrea has over 20 years’ experience in public health project management, health promotion policy and practice, and in the development of sectors and communities to address a range of health and social issues. Andrea now applies this expertise in the context of end of life by combining research and evaluation, policy and program development and a systems approach to support practice that produces sustainable changes in the field. Her interest is engaging sectors not routinely involved in end of life care and networking the capacity built in these sectors with health and palliative care systems.
Harrison-Hunt, Tyla email@example.com
Born and bred in Ōtautahi Christchurch, Tyla Harrison-Hunt discovered a passion for competitive basketball at an early age. Following a shin fracture he turned to coaching, unearthing a talent for helping others that has become a driving passion in all aspects of his life.
Today, Tyla is a high-performance basketball skills trainer. His business, Crossover Coach, sees him coaching a range of athletes; from young children to adults at an elite level. Tyla is also the Head Coach of the Lincoln Men's University Program – the youngest in the history of the university.
Tyla married his high school sweetheart, Saba, whose family are part of the Muslim community in Christchurch. Six years ago, Tyla also converted to Islam – a decision he cites as being one of the most fulfilling of his life. When the Al-Noor Mosque – where Tyla reverted – tragically came under attack on March 15th, Tyla and Saba lost both friends and family. When the opportunity arose, Tyla channelled his grief into good and travelled to Germany, speaking to more than 3000 people on the subject of peace, forgiveness and resilience.
Hazelwood, Mark Mark.Hazelwood@palliativecarescotland.org.uk
Heaton, Maria Maria.Heaton@health.nsw.gov.au
Maria is the mother of three children, two of whom had a diagnosis of Isolated Lissencephaly Sequence. She has a Masters in Nursing Education and currently works as a CNC in Paediatric Palliative Care. She is passionate about health care for people with disabilities and is a co-chair of the ACI intellectual Disability Network. She is also on the NSW Carers Advisory Council and she is a member of the NSW ACI &CEC Consumer Council. Finally she was the 2012 NSW Carer of the Year.
Hepper, Claire firstname.lastname@example.org
Dr. Claire Hepper is a GP working and living in Creswick, Victoria, where she was born and raised. Her father, Brian, was a solo GP, working and living in Creswick for the past 43 years, and the inspiration for the “cradle-to-grave and beyond” continuity of community compassionate approach that Claire aspires to deliver.
Her passion is assisting patients with understanding their options for care and promoting the patient as being ‘the captain of their own ship’. Claire co-founded “Shannon’s Bridge” with Jeremy McKnight in 2016, a charity named in honour of his 19 year old daughter Shannon who died at home in regional Victoria in 2016.
Shannon’s Bridge is a not-for-profit volunteer-run organisation which helps connect patients and families with services and supports at end of life. Where there is a geographical or temporal gap in those services, Shannon’s Bridge upskills community members to support the family and reduce unplanned readmissions to hospital. In 2018, Shannon’s Bridge received its funding from Victorian Government, under the Ancillary Palliative Care Services Grant program, enabling them to work in more areas across Victoria.
Shannon’s Bridge is now also working in collaboration with the federal caring@home project to help health services teach carers how to administer subcutaneous medications in terminal care. By following the Compassionate Community approach, Claire helps communities negotiate a crisis and then advocating for structures to be put in place to avoid a future crisis. Shannon’s Bridge has been working throughout Australia to support the model of ‘bridging the gap’ between formal and informal health services. Claire is also on the Board of Palliative Care Victoria and part of the Clinical Advisory Committee for Palliative Care Australia and has a special interest in palliative care, aged care, beer and the Celtic Football Club.
Kate is a Clinical Psychologist and Postdoctoral Research Fellow in the Behavioural Sciences Unit in the School of Women and Children’s Health, UNSW. Kate completed both her Masters of Psychology (Clinical) and PhD in the School of Psychology at UNSW. Kate’s doctoral research investigated psychological mechanisms involved in the onset and maintenance of depressed mood, with a particular focus on repetitive thinking. Kate has experience in a variety of clinical and research settings. She is particularly interested in understanding the psychological impacts of cancer on children and their parents, and the development of interventions and supports to ameliorate its negative impacts. Since 2016 Kate has been involved in the development and evaluation of the By My Side resources to support bereaved parents.
Hilbers, Julieanne email@example.com
Dr Julieanne is the co-founder of the South West Compassionate Communities Network which is one of eight GroundBreaker communities that form part of the National Compassionate Communities Forum in Australia. Julieanne has over 25 years experience in community development and in building the capacity of health services to take a population health approach in delivering equitable and accessible health services. She has a wealth of experience in health literacy, death literacy and community cultural development processes. She is currently employed by La Trobe University to work with the West Australia Primary Health Alliance to advance a Compassionate Communities approach to end of life in the South West region of Australia.
Hohenberg, Mark firstname.lastname@example.org
Mark is a practicing geriatrician and academic at Western Sydney University. He also works for Dementia Support Australia, providing medical advice through telehealth consultation to colleagues in residential facilities for those with challenging behaviours in dementia, often at the end of their lives.
Mark has a strong interest in supporting communities to improve death and palliative care literacy so that individuals can lead happy lives and a comfortable death. To achieve this, he conducts research into understanding what communities want and puts this into practice through his own clinical work as well as training the next generation of doctors and other healthcare practitioners.
Anna has a diverse and extensive background in the disability industry spanning over 20 years. Her roles have included service design and innovation, operational management and delivery of quality services in a range of settings and across government and non-government spheres. Anna is passionate, energetic and highly committed to strengthening communities to be responsive to the needs and wishes of people with disability as they prepare for, and experience death and/or bereavement. Anna's focus on partnerships and working collaboratively has seen instrumental enhancements within the Tasmania service system for people with disability, their families and those who support them.
Horsfall, Debbie D.Horsfall@westernsydney.edu.au
Debbie is passionate about living in ways which work against domination and oppression of people and planet. Debbie’s transformative agenda privileges people’s voices during a myriad of challenging life events and is informed by creativity, feminist ethics and a politics of hope. Debbie has over 25 years’ experience researching with people from a community development and relationship-building perspective. Her work is strengths based and she strives to support people to have a voice, speak out and be heard.
As leader of the caring at end-of-life research team, Debbie pioneered photo-voice and social network research in end-of-life and aged care research. Debbie’s current research explores the development of ecologies of care and sustainable, compassionate communities in end of life care and for people living with mental illness or escaping domestic violence.
Ms. Ming-Hsuan Hsieh has served in Department of Planning Administrative Center, Taipei City Hospital for more than 7 years. Ms. Ming-Hsuan Hsieh is a member of Compassionate Community Promotion Committee in Taipei City Hospital. By integrating the resources from the hospital and the community, Ms. Ming-Hsuan Hsieh tried her best to interact with people in the community.
Huang, Shen-Jean A4594@tpech.gov.tw
Superintendent, Taipei City Hospital, Taiwan, R.O.C.
Associate professor, Surgical Department, School of Medicine, National Taiwan University. Taiwan, R.O.C
4.Palliative care in ICU.
1.Non-invasive method to estimate intracranial pressure
2.Auto-control of sedatives use in intensive care unit
3.Cerebral autotregulation in severe head injury
4.Quality of life in traumatic brain injury
5.Palliative care in End of life
Hudson, Sharon email@example.com
Sharon Hudson is the lead for Community Development and Partnerships at Birmingham St Marys Hospice in Birmingham UK. She is a nurse who has worked in education, as a community specialist and managing the integration of palliative care services. She obtained a Masters in Research exploring the barriers to access to Palliative Care for people with COPD. She has lead the development of Breathlessness Services and Care Homes Support at End of Life and is committed to enabling access to Palliative Care for anyone who needs it. She is a Director of BrumYODO CIC - a voluntary organisation which uses arts to enable conversations about Death and Dying across Birmingham. This year they will host their 3rd annual ‘Matter of Life and Death’ Festival in Dying Matters Week.
She can be found on Twitter discussing community, homelessness, end of life and inclusion @shazzahudson
Jarvis, Lynne firstname.lastname@example.org
Lynne is a Social Worker with a Graduate Certificate in Palliative Care and has worked in the human services field for over 30 years in a variety of areas. Within the scope of Palliative and End-of-Life Care, Lynne has worked professionally in both community development and direct practice roles. She has a passion for practice, planning and training across the pre and post death care area. Both personal and professional experiences underpin Lynne’s passion for health promoting palliative care, community development and human rights.
Jerwood, Jed email@example.com
Jed is a state registered Art Psychotherapist and Clinical Academic Researcher in Birmingham, UK. He works clinically for Birmingham and Solihull Mental Health Trust with adults with severe and enduring mental illnesses. For the last seven years Jed also worked for John Taylor Hospice with people with terminal illnesses and their families. His work in both clinical settings led him to become interested in the palliative and end of life care needs of people with severe mental illnesses (SMI) who develop incurable physical conditions. He was awarded funding from the National Institute of Health Research, Health Education England and Coventry University to pursue his doctoral research which focused in understanding the barriers to palliative and end of life care for people with SMI from the perspective of patients, carers and clinical staff.
Jed is interested in visual and creative research methods, particularly co-creation, and how clinical practice and research can be better integrated.
Jones, Jenny Jenny.Jones2@health.qld.gov.au
Dr Jenny Jones is Coordinator of the Metro South Health (MSH) Clinical Ethics Service in Brisbane. The three key functions of her role are to assist staff build capacity, provide practical support and build an ethical culture. Much of her capacity building work is with nurses, particularly in the area of moral distress and compassion fatigue. Jenny is Co-Convenor of the Clinical Ethics Stream for the Australasian Association for Bioethics and Health Law and sits on various committees - MSH Clinical Ethics Committee; MSH Human Research Ethics Committee; Children's Health Queensland Clinical Ethics Consultation Service; Queensland Forensic and Scientific Services Human Research Committee. Jenny has published in the areas of Maternal Scholarship, Clinical Ethics, and Nursing. In her non-professional life, Jenny is a loving wife, mother of 3 adult children and grandmother to her gorgeous grandchildren aged 8 years and 7 weeks!
Joudry, Rafaele firstname.lastname@example.org
Rafaele Joudry MSc (Psych.)
Rafaele Joudry has dedicated her life to helping people enhance their lives through better brain performance and emotional intelligence.
She pioneered a portable version of Dr Tomatis’s Sound Therapy after discovering how the program helped her mother’s problems with hearing in background noise, fatigue, insomnia, technophobia and writers block.
Rafaele has found that the openness of our auditory system determines our ability to connect, form functional relationships, communicate across difference and build effective relationships.
Her work is founded on the premise that how we are oriented towards listening depends on our state of neural openness; whether our auditory system is tuned to be in a receptive mode and that all of this begins with our middle ear muscles. Listening and connection take on a whole new dimension when we examine the pathways connecting the ears to the heart, the larynx and the auditory cortex.
Rafaele has been developing, researching and advocating the use of Sound Therapy in numerous fields since 1989. Her program has been used by over 20,000 listeners of all ages, from pre-school to end of life. Several surveys and many interviews have documented the positive results of the program for listeners.
Since founding Sound Therapy International in 1989, Rafaele has toured Australia, Europe & the USA to educate about the impact of sound upon our health.
Rafaele holds a Masters of Psychology and has authored three best-selling books: Sound Therapy: Music to Recharge Your Brain, Triumph Over Tinnitus and Why Aren’t I Learning?
Educated in England and Canada, and now residing in Australia, Rafaele has given hundreds of media interview and has spoken extensively to over 200 community and professional groups, plus a number of conferences, particularly in the ageing sector.
She is currently undertaking a research review of the Tomatis literature and its relevance to various life stages.
Harpreet Kalsi is an Australian Indian woman who has worked for many years in Indigenous Affairs and Indigenous Health, she is Director of Cox Inall Ridgeway where she worked on Commonwealth, State and Territory Health Projects and Campaigns including designing models of care. Since supporting her mothers death, Harpreet is an End of Life Doula, Reiki II practitioner and is completing her Certificate in Aromatherapy. Harpreet is a consumer representative on the Care at End of Life Queensland State Reference Group. Harpreet hold a MA in Conflict Resolution, BA Social Science and Arts.
Kellehear, Allan email@example.com
Prof Allan Kellehear is a 50th Anniversary Professor (End-of-Life Care) at the University of Bradford, UK. He is a medical and public health sociologist. Founder of the world’s first academic public health palliative care unit in Australia in the 1990s, he also wrote some of the first academic literature expounding the public health approach to palliative care, and co-founded (with Sallnow and Kumar) the Public Health Palliative Care Conference Series. He is a Fellow of theAcademy of Social Sciences, and President of the Association for the Study of Death and Society (ASDS) and Public Health Palliative Care International.
Kelley, Mary Lou firstname.lastname@example.org
Mary Lou Kelley, MSW, PhD, is a Professor Emeritus in the School of Social Work at Lakehead University, Thunder Bay, Ontario, Canada. Her 35-year teaching and research career focused on promoting interdisciplinary research and education in gerontology and palliative care. Dr. Kelley was the recipient of the Canadian Hospice Palliative Care Association's 2011 Award of Excellence and the Queens Diamond Jubilee medal in 2012 in recognition of her contribution to Canadian palliative care practice, education and research.
Dr. Kelley’s research and many publications focus on improving health and social services for older adults, rural health, Indigenous health, long-term care policy and delivery, palliative care, and interdisciplinary gerontology education. Her research on community capacity development created a conceptual model (the Kelley model) for developing community-based palliative care programs that are customized to the needs of unique populations and geographies. She was the Lakehead University research chair in palliative care from 2012-2014. Since her retirement June 30 2015 she has maintained her involvement in numerous national research initiatives.
Since her retirement in June 2015, Mary Lou has continued her work promoting palliative care for First Nations communities (www.eolfn.lakeheadu.ca) and become very involved in a voluntary group named Compassionate Ottawa (CO) (www.compassioanteottawa.ca) that is promoting development of Ottawa as a compassionate community. Mary Lou is a member of the CO Advisory Committee and volunteers in several of their initiatives.
Kleijberg, Max email@example.com
Max Kleijberg is a PhD student in Sweden at Karolinska Institutet, at the Division of Innovative Care Research in the DöBra research program. Max is originally from the Netherlands and has a design background with experience in working with innovation and social entrepreneurship projects in transdisciplinary groups. His PhD research is a participatory action research project aiming to support community engagement in end-of-life issues. Max collaborates with various community-organizations to develop Studio DöBra: places where children and elderly people can meet and work together on the theme of death and loss through art projects.
Krishna, Anil firstname.lastname@example.org
Prof. Anil Kumar Indira Krishna is Technical Lead, Public Health, HelpAge International, Myanmar and Professor in Global Health and Population. Prof. Anil served as Professor, Dean and Associate Dean School of Public Health, SRM University, Chennai, India from 2009-2018. Prof. Anil served as Principal Investigator of over 15 public health projects funded by national and international organizations. Prior to that Anil has worked with international, national and UN organizations in Asia in implementing research and programs in public health. Prof. Anil had been provided technical support in the large-scale research studies such as Multiple Indicator Cluster Survey, Global Adult Tobacco Survey, Demographic Health Survey and Evaluation of India Population Project. Prof. Anil’s research focus is on health systems and implementation science research. Anil holding a doctorate in public health with special focus on economics of health care among elderly and have been working in the public health research over two decades. Currently Prof. Anil is leading a team of academicians and policy makers in evidence-based policy initiative on non-communicable disease for the European Union supported project “Strengthening Health System’s Capacity to Respond to Disease Transition in Myanmar.
Kumar, Suresh email@example.com
Director of WHO Collaborating Center in Community Participation in Palliative Care and Long- Term Care
Active in Palliative Care scene in India and abroad for the last 25 years.
Been part of the team that established the community based palliative care network in Kerala. Had held Faculty positions in different Universities in United Kingdom, Australia and Thailand. Currently involved in developing community based palliative care projects in multiple sites in many countries.