Rahn, Alison a.rahn@westernsydney.edu.au

Dr Alison Rahn is Senior Research Officer on the Caring at End of Life Team in the School of Social Sciences and Psychology at Western Sydney University, Adjunct Research Fellow at the Australian Centre for Evidence Based Aged Care, La Trobe University and Adjunct Research Fellow in the School of Humanities, Arts & Social Sciences at the University of New England. In 2018, she was awarded the Chancellor's Doctoral Research Medal her thesis, Behind Closed Doors: Exploring Ways to Support Partnered Baby Boomers' Coupledom in Residential Aged Care Settings. Her research interests include older age sexuality, human rights and social justice issues at end of life, end of life caring and the socio-environmental impacts of residential aged care.

Rankin-Smith, Holly holly@thegroundswellproject.com

Holly is the Compassionate Communities National Lead for The GroundSwell Project. With over ten years experience in rights-based community development, Holly has worked with communities across Australia on projects addressing a range of social issues including; at-risk young people in rural areas, isolation in elderly maritime communities and justice campaigning for indigenous communities. Holly has experienced the arts to be a key driver in sustainable social change work and this forms the underlying approach to her current work in growing community capacity in end of life care. Holly has a Master of Development Studies and is a qualified civil celebrant.

Rawlings, Debbie deborah.rawlings@flinders.edu.au

Deb's background is in nursing having trained, and worked clinically, in both oncology and palliative care. In the last 15 years Deb has worked on four Commonwealth funded projects, namely the National Rural Palliative Care Program, the Palliative Care Outcomes Collaboration, CareSearch, and more recently End of Life Essentials on which she is a co-investigator. Deb was an author and moderator on the Dying2Learn Massive Open Online Course (MOOC) and currently works as an academic and researcher in Palliative and Supportive Services in the College of Nursing and Health Sciences at Flinders University

Read, Niki niki@thegroundswellproject.com

Niki Read is a multi-disciplinary artist and community cultural development worker that has been a part of The GroundSwell Project since the early days. Niki, having run community based remembrance ceremonies for several years, started volunteering as an end of life community mentor 10 years ago and has since worked for 5 years as research assistant with The Caring at end of life research team at Western Sydney University. For the past 2 years Niki has been delivering grass-roots compassionate communities projects in the Blue Mountains and at Liverpool Hospital Palliative Care ward, where she also works as lead artist with the Creative Legacy project.

Richardson, Heather H.Richardson@StChristophers.org.uk

Heather Richardson works as one of the Joint CEOs of St Christopher’s Hospice, London. She has previously held the role of National Clinical Lead for Hospice UK, serving as executive lead on the National Commission into the Future of Hospice Care and worked as Clinical Director, then Strategy Advisor to St. Joseph's Hospice in East London.
Heather is a registered general and mental health nurse and has worked in hospice/palliative care since 1988. She has a PhD, her research concerned with users’ experience of day hospice. More recently she has developed a research interest around public health and end of life care. She currently serves as an honorary professor in palliative care at Lancaster University.

Robinson, Jackie j.robinson@auckland.ac.nz

Jackie Robinson is a Palliative Care Nurse Practitioner and Service Lead Clinician for the Auckland Hospital Palliative Care Team. She also holds a joint appointment as Senior Lecturer with the School of Nursing at the University of Auckland. Jackie has recently completed her PhD which explores the benefits and burdens of hospital admissions for patients with palliative care needs. She is now in the process of developing her own program of research focused on the role of the acute hospital in palliative and end of life care. She has recently been successful in obtaining a number of research grants to explore the role of community nursing within an integrated model of palliative care.
Jackie is an active member of the University of Auckland’s Te Arai Palliative and End of Life Care Research Group which is the only bi-cultural research group in New Zealand. She works closely with her colleagues on numerous research projects as co-investigator and clinical advisor including topics such as palliative care in dementia, aged residential care settings, the cost of caregiving in palliative care and experiences of care at the end of life from the perspectives of bereaved families.

Roseman, Joanne joannecomito@rocketmail.com

Joanne speaks 3 languages: English, Health and Palliative Care. However, despite this and over 35 years as an RN she was not able to provide a "good death" for her father. With a personal life and working life that has seen dying in many ways she hopes to foster open discussions of death and dying. When she grows up she wants to be a writer. When she dies she wants to be wrapped in an old sheet and thrown off the back of a boat out at sea...quite deeply really.

Rosenberg, John jrosenbe@usc.edu.au

Dr John Rosenberg is a Registered Nurse with a clinical background in community-based palliative care. His PhD, awarded in 2007, is the first in the field of health promoting palliative care and he is a foundation member of Public Health Palliative Care International.
John is a Senior Lecturer in the School of Nursing, Midwifery and Paramedicine at the University of the Sunshine Coast in Queensland, Australia. He holds the position of Adjunct Associate Professor in the School of Social Sciences and Psychology at Western Sydney University, working with the Caring at the end of life research group.

Rumbold, Bruce b.rumbold@latrobe.edu.au

Bruce Rumbold is Director of the Palliative Care Unit at La Trobe University, Melbourne. The Unit works collaboratively with health services, community groups and other academic programs in a number of community capacity building projects on end of life care. His other responsibilities at the university include postgraduate supervision and coordinating health promoting palliative care and spiritual care academic programs. Bruce’s multidisciplinary interests are supported by postgraduate qualifications in physics, practical theology and health social science. Prior to joining La Trobe University, he was from 1986-2002 foundation professor of pastoral studies at Whitley College, an affiliated teaching institution of the Melbourne College of Divinity. In 2005, he was awarded an OAM for services to palliative care and pastoral care, particularly as an educator. Social determinants of end of life experience, forming and sustaining compassionate communities, and spiritual care, are the particular foci of his current work.

Sallnow, Libby libby.sallnow@nhs.net

Dr Libby Sallnow is Palliative Medicine Consultant at Central and North West London NHS Foundation Trust and University College London Hospitals NHS Foundation Trust. She is an honorary senior clinical lecturer at St Christopher’s Hospice & University College London. Her PhD evaluated the impact of compassionate communities in practice and she has supported the development of the international movement in new public health approaches, exploring the benefits of collaboration for communities and hospices, the role volunteers and communities can play in end of life care and developing new models of engagement. Libby is supporting the Lancet Commission on the Value of Death, exploring the relationship between death and medicine across the global. She is a founding member of Public Health and Palliative Care International (PHPCI) and the public health reference group for the EAPC.

Samson-Daly, Ursula ursula@unsw.edu.au

Dr Ursula Sansom-Daly is a clinician-researcher and a Post-Doctoral Fellow at the School of Women’s and Children’s Health, UNSW Medicine, University of NSW. She leads the mental health research team within the Behavioural Sciences Unit, Sydney Children’s Hospital. Ursula is also the lead Clinical Psychologist for Sydney Youth Cancer Service, the largest clinical service for the treatment and care of adolescents and young adults (15-25 years) with cancer in Sydney. Reflecting her dual clinical-research roles, Ursula focuses on applying evidence-based psychology to both understand, and address, mental health issues among adolescents and young adults with cancer from diagnosis through to survivorship and end-of-life. For the past 5 years, she has led two large national randomised-controlled trials, ‘Recapture Life’ and ‘Cascade’, evaluating the feasibility and efficacy of online videoconferencing interventions for adolescent/young adult cancer survivors, and parents, in adjusting to life after cancer. Ursula also has a growing research focus on improving end-of-life communication with young people with life-limiting illnesses. She is currently leading a funded program of work investigating end-of-life communication practices in Australia and overseas, and tailoring an advance care planning tool to Australian adolescents and young adults.
Ursula holds prestigious Early Career Fellowships from both the National Health and Medical Research Council (NHMRC) and the Cancer Institute NSW, and has been a chief investigator on grants >$4.9M. She was the Clinical Oncology Society of Australia’s New Investigator in Psycho-Oncology in 2017, and was also chosen to be one of the 'Top 5 Under 40' scientists in residence at the Australian Broadcasting Corporation (ABC) in 2017.

Scholz, Brett brett.scholz@anu.edu.au

Brett Scholz is a research fellow at The Australian National University Medical School. His research is concerned with consumer leadership in health systems, services, and academia, as well as exploring what non-consumers can do to ally with consumers and facilitate consumer leadership.

Sexton, Rose endstageproductions@gmail.com

With over 35 years of nursing experience and post-graduate qualifications in palliative care, Rose has a great passion for supporting those at the end of life. She holds a deep desire to open up discussions around death, dying and end-of-life issues, believing that this contains enormous possibilities for living more fully and richly. She has also had recent personal experiences providing end of life support and understands the challenges, nuances and opportunities in this space.

She has a long history in the performing arts, including music and theatre and is a firm believer in its transformative power.

Rose has regularly held workshops, courses and events in her local area, promoting conversations around death and dying over the past three years, and is a qualified and experienced Advance Care Planner.

Stajduhar, Kelli kis@uvic.ca

Dr. Kelli Stajduhar, RN, PhD is a professor in the School of Nursing and Institute on Aging & Lifelong Health at the University of Victoria, and a research scientist with Fraser Health. She has worked in oncology, palliative care and gerontology for almost 30 years as a practicing nurse, educator, and researcher. Her work focuses on health service needs for those at the end-of-life and their families, and on the needs of marginalized and vulnerable populations. Dr. Stajduhar has 300+ academic publications and presentations. Dr. Stajduhar has received multiple honours and awards in recognition of her work, most recently being named a Fellow of the Canadian Academy of Health Sciences.

Tieman, Jennifer jennifer.tieman@flinders.edu.au

Jennifer Tieman is the Director of CareSearch palliative care knowledge network, a government-funded initiative that has helped health professionals as well as patients, friends, families and carers with palliative care-related information needs for the past 10 years. CareSearch focusses on making palliative care evidence accessible when it is needed, and also undertakes knowledge translation and dissemination activities aimed at raising the profile of evidence-based palliative care in Australia. CareSearch developed and maintains palliAGED, an online evidence resource for palliative care in the aged care sector. In 2016, 2017 and 2018, CareSearch also delivered a Massive Open Online Course (MOOC) called Dying2Learn, which aimed to facilitate discussion about death and dying in the Australian community. The Dying2Learn MOOC won the Innovation in Palliative Care award at the 2017 Palliative Care Australia Conference.
Additionally, Jennifer is on leadership groups for several national projects, including the Advance Project, ELDAC and End of Life Essentials. She is also a member of numerous other groups, including the Doctors Legal Knowledge Project Advisory Group, the Adelaide Biomed City Research Advisory Committee, and the Advance Care Planning Australia Education Advisory Group.
Jennifer’s particular areas of research interest are in palliative care, evidence and translation, health informatics, and aged care.

Tishelman, Carol carol.tishelman@ki.se

Carol Tishelman was born, bred and educated as a RN in the US, but has lived in Sweden for most of her life. She presently has an Endowed Professorship in Innovative Care, working at the juncture of health and social care. This is a joint position, located at Karolinska Institutet’s Division of Innovative Care Research, which Carol co-leads, and at Stockholm Health Care Services, which is responsible for all regional health care outside of acute care hospitals. Carol also works part-time at the Center for Rural Medicine, located about 800 km north of Stockholm. Carol has conducted research in palliative care for several decades, and now leads the national competitively-funded DöBra research program in Sweden, aimed at integrating palliative care, public health and health promotion.
Carol will moderate the workshop which will be held with colleagues engaged in different projects in the DöBra Research Program: Rebecca Hilton, who is a choreographer and Professor of Site, Event & Encounter, engaged in the project “Space and Place in End-of-life Care”; Therese Johansson who has a background in psychology and is engaged in the project “Death and dying in elder care – developing competency through action research” and Max Kleijberg, with a background in design, engaged in the project “Studio DöBra: Creating spaces for school children, elderly people and community organizations to support engagement in end-of-life topics using the arts”.

Tompkins, Bonnie btompkins@pallium.ca

Bonnie works at Pallium Canada and is a public health professional whose work mobilizes Compassionate Communities across Canada and focuses on the community and their role in supporting those experiencing serious illness, caregiving, dying, and grieving. Bonnie has led community-level initiatives across Canada and is an active contributor to Compassionate Communities work internationally. She is a council member of the Public Health Palliative Care Association and contributor to CancerandWork.ca. Her interest in palliative care developed through personal experiences as a caregiver to her late partner who died while completing her public health degree.

Torensma, Marieke m.torensma@amc.uva.nl

Marieke Torensma is a PhD student at the public health department of the Amsterdam University Medical Centers, location AMC. Her research focuses on how to improve diversity responsiveness of palliative care and includes studies on the palliative care needs of migrant patients; physician’s end-of-life decision making for migrant patients; and ways to make palliative care services as well as palliative care research responsive to diversity. The study on responsiveness of palliative care research is part of an applied research project in which Marieke advices palliative care researchers on ways to improve engagement and enrollment of underrepresented populations in their palliative care research.
Marieke holds a MSc in medical anthropology and sociology from the University of Amsterdam and was previously employed by Pharos the Dutch center of expertise on health disparities.

Tsai, Ching-Yao A4594@tpech.gov.tw

Dr. Ching-Yao Tsai received both his MD and PhD from the Institute of Public Health at Taiwan National Yang-Ming University. He is an attending physician and the deputy superintendent for Taipei City Hospital’s Zhongxing Branch. Dr. Tsai is one of the pioneers to offer low vision clinical appointments in hospitals. He has devoted tremendous time to promote public education for low vision care and resources integration. In 2017, as the result of his effort, Taipei City Hospital opened its resource center to offer both medical and daily living rehab services to patients with low vision. It is the first program that integrates low vision clinical care with the provision of assistive device services in Taiwan.

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