Chair: Bonnie Tompkins
a. Learning in building connections and partnerships with disabled people
All authors: Tomoyuki Dobata, Chairperson, Toseikai Healthcare Corporation
Satoko Hotta, Professor, Graduate School of Health Management, Keio University
Presenting author: Tomoyuki Dobata
Toseikai healthcare corporation, established at 2013, has seen many disabled children and adult with severe physical disabilities who require home mechanical ventilation. At the time of the 2018, we see 170 patients and visit their home for more than 4,000 times a year.
With our mission: “make a better society with disabled people “, we have tried to build connections and partnerships with disabled people, their family, and their supporters. Also, we have tried to disseminate the current situation of them to all the people by making full use of multiple media.
Future creating school: life-long learning with parents of disabled children; Future creating research: co-creating practical knowledge with people who have bereavement from loss of their children; Future creating university: higher education with disabled people; Publishing a picture book of disabled children and their families; Film-making with a major Japanese film company: a movie of a real man with muscular dystrophy who requires mechanical ventilation.
The elements of learning in connections and partnerships are important for patients, their families, their supporters, medical professionals, and the people involved. Learning makes people compassionate.
Conclusions and application to PHPC:
The element of learning is effective for building compassionate connections and partnership. In 2018, we established Center for Compassionate communities in Graduate School of Health Management, Keio University. We will continue exploring whether it apply to all the people, including elderly and dying person.
b. Victorian councils engaging communities around end of life
Presenting Authors: Jan Bruce and Katherine Wositzky
The ‘Victorian Councils: Supporting Communities Around End of Life Project’ has been exploring how local government can build the capacity of communities to view dying as a natural part of life and to encourage more people to actively participate in caring and supporting people at the end of their lives, at home and in their community. This partnership project between the Municipal Association of Victoria and La Trobe University Palliative Care Unit is in the final year of a three year project funded by the Victorian government. The Project is funded within a Public Health Palliative Care framework, where the concept, understanding and responses to end of life are challenged with the increasing recognition that death a social (not just a medical) event. Understanding death within this social context provides the overarching context of the Project and the reason behind the states investment in exploring the end of life in the local government context. The project has been working through council positive ageing and aged services areas, and builds on the established connection of Victorian councils to their older residents. The project has been well received and many councils have developed initiatives and actions to engage with their community on dying, death and bereavement. A wide range of resources have been developed as part of the project by the project which is now broadening its focus to explore how dying, death and bereavement can be incorporated into local government health and well being planning. This session will outline the project, introduce the resources developed for the local government sector, share learnings, and outline how building the capacity of the local government sector can support local communities to support one another around matters concerning the end of life.
c. Deva Nation USA how will it work in the USA? Piloting the Compassionate Town Charter
Mary Ann Boe
The inspiration and empowerment for Deva Nation to establish a Compassionate Community in Greater Mankato, Minnesota came when I attended the 5th PHPCI Conference. In November of 2017, Deva Nation was granted funding to conduct a six-month community interview process. Over 100 residents shared their experiences of dying and loss. The heartfelt stories that came from these interviews told of a strong need for education and a real desire for the social action necessary to create community capacity to serve those in need. This initial assessment was a vital first step for establishing Deva Nation’s credibility and the feasibility of success for our Compassionate Community.
Phase II of the project was to advance alliances with service organizations, educational institutions and non-profits and produce community events to help normalize conversations about death. These activities culminated in a ‘town hall’ meeting led by an engaging presentation from Dr. Allan Kellehear. We are currently working on Phase III which includes the establishment of a steering committee to guide the implementation our “Kato Towns” Compassionate Community Charter.
We do not have a national health system in the United States that looks after the wellbeing of its citizens. The majority of our health care systems are run for profit. Our national health policies are influenced by major lobbying efforts of the big pharmaceutical and insurance industries. At the city level, policies are largely directed by legislation from the state departments of health. Fortunately, we are finding many innovative state initiatives that share our compassionate community values. It appears that success of the Compassionate Community movement in America will come from community grass roots efforts. We believe that for that success to scale and to be funded, our ‘whole of community’ approach is one that needs to include partnerships at both local and state levels.
d. From problems to possibilities: Appreciative inquiry enables partnerships in compassionate communities
All Authors: Ms Wendy Gain, Independent Consultant, Brisbane
Dr John Rosenberg, Research Fellow, University of Sunshine Coast
Presenting Author: Wendy Gain
‘Community partnerships’ is one of six recommended approaches for developing Compassionate Communities in Australia, but establishing a Compassionate Community won’t happen by accident. Like any attempt to enter a partnership with many players, it can easily become stuck in identifying problems. Knowing the hurdles to come is essential, but a process that identifies the strengths and capabilities of individuals and communities, services and systems, presents opportunities for developing partnerships to build Compassionate Communities. In this presentation, we explore an innovative practice process.
1. Design a co-created vision from the collective, imaginative and innovative capacity of the group based on past successes, current strengths and future possibilities.
2. Develop an activity plan for partners to follow for the development of their Compassionate Community.
We apply the ‘5D’ process of Appreciative Inquiry to discover the positive experiences and stories of community members and health service representatives.
Discovering personal and organisational stories and experiences highlighting strengths, assets and successes, enables a co-created vision for a Compassionate Community. Using arts media, this shared, desired vision for the future is crafted through creation of an image of a positive future, representing the essence of a ‘provocative vision statement’. It remains an image that guides their vision as partners implement their Compassionate Community.
Conclusions and application to PHPC
Partnership development is complex and not without risk, however the use of AI in the process is transferable to settings where individuals and groups seek to establish and build partnerships. This presentation provides an description of practice of this process which enables the establishment of strength-based community partnerships as a foundation for Compassionate Communities.