(presenting) Andrea Grindrod; La Trobe University Palliative Care Unit
Bridget Garnder, La Trobe University Palliative Care Unit
Background and Aims
The Healthy End of Life Project (HELP) is the product of a community practice and research enquiry since 2016. A major theme includes the reluctance of carers to ask for, or even accept, offers of help from family, friends and community networks despite rich social networks and a need for support while providing home-based end-of-life care. Ohers’ willingness to provide support was hindered by uncertainty about what to offer and confidence. To develop community capacity for providing end-of-life care, these counter-productive social norms need to change.
La Trobe University Palliative Care Unit (LTUPCU) has over thirty HELP stakeholders using the framework to guide their practice across a range of local and international settings. This workshop will share the emerging central themes relevant to all settings where HELP is being implemented, the varied leading components of the HELP framework that feature differently between jurisdictions, the elevation of certain aspects that serve to fill gaps, and the varied creations of collective HELP resources with partners across a range of locations.
The HELP team will share practical experiences, strategies (both useful and not) and outcomes with workshop participants to make practically accessible steps to promote success and reduce oversights. Participants will engage in group discussion, view AV resources and learn how to facilitate phased community HELP groups.
Workshop participants will learn about the key steps that are central to all HELP stakeholder settings. Strategies on how to maintain sustainable community involvement will be covered, as well as the recommended building steps that increase community confidence and capacity around the social norms and asset-mapping.
HELP is considered a Public Health Palliative Care intervention, using an asset and evidence-based community development framework to guide practice and implementation. HELP resources continue to expand with increase uptake and shared learnings.